RESOURCES
FOR FACIAL SURGERY
AND RECOVERY
This page contains
resources for pain control, eating, prosthetics,
and legal resources.
SURGERY
AND RECOVERY RESOURCES
Prepare for Surgery, Heal Faster
By Peggy Huddelson. Detailed book with audio tape. One friend of Let's Face It, who has had
over 60 facial surgeries, says she thinks all
people should read this book whether they are
having surgery or not!
(303) 487-4440 or (800) 726-4173
Web: http://www.healfaster.com
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Articles on recovery after
major brain surgery
The Acoustic
Neuroma Association March 2002 newsletter (Notes) has
several articles that we found helpful and interesting. The newsletter
reports how patients and professionals deal with common issues after
major head and neck surgery: dry mouth, dry eyes, tinnitus, etc. The
lead article, Facial Rehabilitation after Acoustic Neuroma Surgery,
is written by OTR Facial Retraining Specialist H. Jacqueline Diels.
This article alone could be useful for discharge planning for head and
neck surgery patients. For free copies, contact the Acoustic
Neuroma Association.
Broken Bodies, Healing Hearts
Reflections of a Hospital Chaplain
Gretchen W. TenBrooks' paperback book is a delight. Her actions and
thoughts as she walks the halls of Johns Hopkins Hospital are fun, deep,
and insightful. A wonderful gift for your favorite clergy person, social
worker, or Child Life Specialist.
Publisher: Haworth Press Inc.
Chronic Illness and the Twelve Steps - A Practical Approach to
Spiritual Resilience
Martha Cleveland gives us this clearly written guide to healing our
lives. Highly recommended by many Let's Face It readers.
Publisher: Hazelden Press
Complex Craniofacial
Problems - A Guide to Analysis and Treatment
By Dufresne, Carson, and Zinreich. Text book.
Available through interlibrary loan or medical libraries.
Publisher: Churchill
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Facing Facial Surgery? Cut Out the Caffeine
When facing surgery where normal eating will be
interrupted, give yourself or your child a smoother
recovery by stopping caffeine at least a week before the
surgery. This means coffee, chocolate, caffeine-laden
soft drinks, etc. Many patients struggle with the added
effects of withdrawal: a mean headache, irritability, and drowsiness. Having these symptoms is much better the week
before surgery than during the days after. -Betsy Wilson
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 Finding
the Joy In Today
Practical Readings for Living with Chronic Illness
By Sefra Kobrin Pitzelle. Down to earth daily readings for any
adult living with chronic illness or even wellness with a chronic
illness. Recently, several long- term head and neck surgery patients
have called thanking us for suggesting this paperback book. A welcome
gift.
Publisher: Hazelden Press
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Frances Cooke Macgregor
The late Professor Macgregor's publications reflect her 40 years of in-depth, detailed research with people who have facial disfigurement. Her validation of the "brief encounter" and what it can do to mental health is one of her many contributions to our knowledge about living with facial difference.
Facial Disfigurement: Problems and Management of Social Interaction and Implications for Mental Health
An important article. From the Fall, 1990 issue of the International Society of Plastic Surgery Journal (vol.14, pg.249). For a copy of this article, send a SASE with $2 postage to Let's Face It (address at bottom of page).
Books by Professor Macgregor
Publisher: Greenwood Press Publishing Group
The following two works are out of print, but many libraries have copies or can get you a copy:
Publisher: Quadrangle Press/The New York Times Book Company, New York, 1974
For a complete bibliography of Professor Macgregor's work, send a SASE with $1.85 in postage to Let's Face It (address at bottom of page). |
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Friends' Health Connection
A powerful network that links anyone with a medical
problem to people and resources for that illness.
Roxanne Black, Director
P.O. Box 114
New Brunswick, NJ 08903
(800) 48-FRIEND
Web: http://www.48friend.org
Generalized Anxiety Disorder: Toxic Worry
The Harvard Mental Health letter published this article in their
January 2003 issue. We found this article very interesting and
helpful for understanding some anxieties in ourselves and
others.
E-mail: harvardmtl@eparent.com
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I Can't Get Over It, A Handbook for Trauma Survivors
By Aphrodite Matsakis, Ph.D. Many adults who had surgeries as
infants and as adults have told us about the healing powers of this
book. Surgery of the head and neck are traumatic events in our lives.
The physical and medical symptoms of Post-Traumatic Stress disorders are
explained and the reader is given specific tools for healing. Let us
know if you find it helpful.
Publisher: New Harbinger Publications
Laurel's Kitchen Caring, Recipes for Everyday Home
Caregiving
By Laurel Robertson. Many practical nurturing ways to care for an ill
loved one.
Publisher: Ten Speed Press, 1997
Meeting the Challenge, Living
with Chronic Illness
By Audry Kron. The public are singing praises for this
200-page paperback. It is full of down to earth, creative ways of
dealing with the many parts of any chronic illness. We particularly
enjoyed Ms. Krons' direct steps for dealing with pain.
Center for Coping with Chronic Illness
West Bloomfield, MI
(248) 626-1379
My New Nose
In this article, Christine Lemmo, a
woman born with a cleft lip and palate, frankly shares the dilemmas of
deciding to have corrective surgery on her nose. This article, with
its honesty and hope, is a gift to all adults who are contemplating
facial surgery. AboutFace USA Winter/Spring 2002 Newsletter. You can
read this article online at http://www.aboutface.org
or http://www.cleftadvocate.com.
National Coalition Against Domestic Violence
This service is for survivors of domestic violence who
have facial or neck disfigurement. The American Academy
of Facial Plastic and Reconstructive Surgery will refer
patients to its member surgeons who will perform free
reconstructive surgery. There is a careful screening
process. Recipients need to have been separated from their abusive
intimate partners for one year.
Ann Beauvais, Program Services Coordinator
P.O. Box 18749,
Denver, CO 80218
(303) 839-1852
E-mail: abeau@ncadv.org
Web: http://www.ncadv.org
Physicians' Guide to Rare Disorders - Second
Edition
Text book.
Publisher: Dowden
(800) 707-7040
The Relaxation Response
By Herbert Benson, M.D.
Publisher: Avon, 1999
War of the Wills, and Other Stories About Family
As told by David Roche and Marlene Blavin. This delightful, gentle, humorous CD has tales that gave us belly laughs. The CD would make a great addition to anyone recovery from surgery and is fun for all. David Roche, a San Francisco based comedian was born with a hemangioma and we thank him and his wife for this 2004 addition to our resource list. See David Roche for contact and ordering information.
Wherever You Go There You Are
Dr. Jon Kabat-Zubb gives the reader skills for taking
responsibility for their own health.
Publisher: Hyperion, NY, 1994
Your Body Believes Every Word You Say
Barbara Levine demonstrates and gives historical medical
facts about our bodies reactions to our thoughts.
Publisher: Words Work Publishing
(203) 372-0300
EATING
RESOURCES
Zip-N-Squeeze
Patients, parents, and professionals are raving
about this simple inexpensive eating device.
This invention can revolutionize the care of
jaw and oral surgery patients, old and young.
Susan Beaudette, R.N.
P.O. Box 575
Yorba Linda, CA 92885-0575
(714) 997-7146
E-mail: zipnsqueeze@earthlink.net
Web: http://www.zip-n-squeeze.com
 Soft-Sipp Bottles
The Soft-Sipp leak-proof Squeezable Feeder is designed to replace awkward syringe feeding, enhancing liquid nutrition for infants & toddlers after surgery. The exclusive design includes an easy-to-handle collapsible bottle and an ultra soft tip. Simply Squeeze to deliver important nutrients without the risk of injury to newly sutured areas of the face and mouth. This bottle promotes comfort for both patient and care-giver, helping to reduce stress and make post-op feeding a positive experience. See Zip-N-Squeeze for contact and ordering information.
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Dinner Through a
Straw
Let's Do Lunch (and other meals)
By Becky R. Dethero. Delicious recipes.
Dinner Through a Straw
P.O. Box 332574,
Murfreesboro, TN 37133
(800) 842-3841
E-mail: dinnerthroughastraw@yahoo.com
Web: http://www.dinnerthroughastraw.net
A Patient Education Guide
for Wired Jaws
By Becky R. Dethero. Plastic Surgical Nursing (Winter, 1995, vol.15, no.4).
PAIN
CONTROL RESOURCES
American Chronic Pain Association
For over 20 years this network has been dedicated to giving support and
teaching coping skills to anyone suffering from chronic pain! Chapters,
annual meetings, education materials, etc.
P.O. Box 850, Rocklin, CA 95677
(800) 533-3231
E-mail: acpa@packbell.net
Web: http://www.theacpa.org
Chronic Illness and Uncertainty
A Personal and Professional Guide to Poorly Understood
Syndromes
Don L. Goldenberg, M.D., documents what we know and do not
know about fibromyalgia, chronic fatigue, migraine,
depression, and related illnesses.
Publisher:
Dorset Press
National Chronic Pain Outreach Association,
Inc. (NCPOA)
P.O. Box 274,
Millboro, VA 24460
(540) 862-9437
E-mail: ncpoa@cfw.com
Web: http://www.chronicpain.org
National Fibromyalgia Partnership, Inc.
Includes a wide range of information and resources on fibromyalgia
including articles, books/videos, online store, and events/studies.
P.O. Box 160,
Linden, VA 22642- 0160
(866) 725-4404
E-mail: mail@fmpartnership.org
Web: http://www.fmpartnership.org
PROSTHETIC
RESOURCES
We are sorry you are needing information about new
parts to your face, but we are delighted to bring you these resources
that can explain some of the wonderful work that can be a part of your
"new normal."
Also, please see the Craniofacial Surgery book on
the web site of the Craniofacial Foundation of
America and Face
Value.
American Anaplastology
Association
The American Anaplastology Association is a nonprofit interdisciplinary
organization dedicated to promoting the art and science of prosthetic
therapy for patients with facial or somato differences due to cancer,
trauma, or congenital origin.
P.O. Box 27440 Seattle, WA 98165-2440
(206) 268-0311
E-mail: aaa@anaplastology.org
Web: http://www.anaplastology.org
Craniofacial Prostheses: Anaplastology and
Osseointegration
A text book detailing the techniques for rebuilding
faces.
Quintessence Publishing Co., June 1997,
Carol Stream, IL
(800) 621-0387
Entific Medical Systems
Please contact for a free booklet about facial prosthetics.
7610 Olentangy River Rd.,
Second Floor
Columbus, OH 43235
(888) 825-8484
E-mail: info@entificusa.com
Web: http://www.entific.com
The Ocularist (video)
A beautiful, 8 minute, short film. Director Vance Malone honors the
art and grace of one man, Fred Harwin, who creates new eyes for
patients who need them. This film won second place at the 2003
Sundance Film Festival. We urge craniofacial centers, schools, etc., to
get a copy and to use it creatively.
Food Chain Films, Portland, OR
(503) 274-9644
Web: http://www.foodchain.com
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LEGAL RESOURCE
FindLaw
This is an excellent disability and law resource site.
Web: http://www.findlaw.com/01topics/36civil/disabilities.html
RECONSTRUCTIVE MAKEUP RESOURCES
Image Enhancement and Support Center
Burn survivor Barbara Kammerer Quayle, MA, has created a wonderful center where those of us who look different can learn to develop reentry skills which include using corrective cosmetics, color and style choices, dealing creatively with people staring, teasing, etc. Trained professionals all over the U.S., workshops, one-on-one, etc.
The Book of Image Enhancement for Burn Survivors, a new book that comes with a video/DVD, is for anyone dealing with facial difference! It was created with the help of a grant from The International Association of Firefighters, thus it has "burn survivor" in the title to honor their generosity. It is available through the Phoenix Society.
12300 Montecito Rd., #49
Seal Beach, CA 90740
(562) 431-6276
E-mail: bquayle@verizon.net
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