“I'm concerned rural patients won’t be able to access an entire class of drugs just because of where they live.” Thanks, , for highlighting additional barriers West Virginians & rural communities face with 's decision. We need #AccessNow, without red tape.
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Alzheimer's Association
@alzassociation
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ
Alzheimer's Association’s Tweets
"I've demonstrated what’s meaningful & necessary in my life. What's meaningful & necessary in yours? What if this were you? The government shouldn't be having this conversation with me. This should be between myself & my physician. Period.” Well said, . #AccessNow
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Thank you, , for speaking up for people living with early Alzheimer’s. The choice to take an FDA-approved treatment should be between the individual, their loved ones, and their doctor. We need #AccessNow.
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. is right. saying accelerated approval ≠ full approval, and denying coverage based on this, sets a precedent for Medicare to deny coverage for ALL drugs approved through this pathway, including drugs for cancer. #AccessNow
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“This is an urgent issue. The Association estimates that each day 2,000 individuals aged 65 or older transition out of eligibility for these treatments. As of today, approximately 248,000 people have progressed past the point of eligibility since [Leqembi’s] approval in January."
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“Thank you for the opportunity to share what access to innovation means to me: It means #MoreTime with my wife, my kids and my grandkids.” - , living with MCI at 48, testifies at the health subcommittee hearing for #AccessNow to FDA-approved Alzheimer’s drugs.
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“Broadly restricting coverage for Alzheimer's treatments is a devastating blow to the patients and caregivers relying on new innovations." Thank you, Committee Chair , for standing with people living with early Alzheimer’s and their families who deserve #AccessNow.
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“Americans don’t have time to wait until comes to its senses…CMS should not be second guessing the scientists at the FDA.” Thank you, , for sharing your personal story and for speaking up for #AccessNow to FDA-approved Alzheimer’s treatments.
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Our advocates are turning the and health subcommittee hearing purple to show their support for #AccessNow to FDA-approved Alzheimer’s treatments!
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Thank you to the advocates who rallied today in Chicago for #AccessNow! Your dedication, along with all those taking action, tells that we won’t back down in fighting for equitable access to these life-changing treatments. People with early Alzheimer’s can’t wait.
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“We need something NOW for people who have been diagnosed at early stage. If [these treatments] are working, they should have access to it.” Thank you, John, for fighting for #AccessNow to safe and effective FDA-approved Alzheimer’s drugs.
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HAPPENING NOW: Advocates are gathered at the office in Chicago to demand #AccessNow to FDA-approved Alzheimer’s drugs. 📣 Today kicks off a series of rallies happening at CMS offices across the country over the next few weeks. Add your voice: p2a.co/NOkIavt!
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Thank you, , for continuing to be a powerful voice for the Alzheimer's community as we fight for #AccessNow to FDA-approved Alzheimer's drugs. Watch Tony testify live to Congress today starting at 1 p.m. CT: waysandmeans.house.gov.
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Breaking News- It's official!! I have been invited to testify to the Ways & Means committee at Capital Hill this Wednesday!!! I am so blessed to have you all on this journey...thank you! #live4today 
#ENDALZ #moretime
#ENDALZ #moretime
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Tee-rrific, it’s #NationalGolfDay ⛳️! Tee up an impact for the fight to end Alzheimer’s by registering to play Golf on #TheLongestDay. Find out how you can make a golf fundraiser a hole-in-one: alz.org/TLDgolfing.
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Happy birthday, ! Thank you for continuing to stand with us in the fight to end Alzheimer’s disease and all other dementia.💜 #ENDALZ
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The day with the most light is the day we fight! On June 21 — the summer solstice — join thousands of people across the world in raising funds and awareness for the fight to end Alzheimer’s. Register now for #TheLongestDay: alz.org/TLD. #ENDALZ
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In front of the camera, famed actress Rita Hayworth dazzled fans with her mesmerizing smile, sensational dancing and Hollywood glamour. Off screen, the star’s life slowly unraveled as she faced Alzheimer’s disease. Read her story in ALZ magazine: bit.ly/40OEK3x. #ENDALZ
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Over the weekend, the Fourth Annual #InspireNapaValley raised $1M+ to support the work of the Alzheimer's Association. The three-day event brought together wine enthusiasts & industry leaders to raise funds and awareness to #ENDALZ. Thank you to all who made the event a success!
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Today’s NAPA Advisory Council meeting again demonstrated that isn't listening to the needs of people with early Alzheimer’s. It was also a reminder that CMS doesn’t have a plan in place to give access now or in the future. Take action: p2a.co/NOkIavt! #AccessNow
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We partner with , a professional organization for nurses & nursing students, to promote brain health in the African American community & maximize support for those affected by Alzheimer’s through awareness & education. Thank you, Chi Eta Phi! #NationalNursesMonth
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"By the time you decide this, I won't be eligible...Don't let perfection get in the way of getting these effective treatments to us." People with early Alzheimer’s, like Joe, can’t wait. The FDA accelerated approval pathway exists for a reason. , we need #AccessNow!
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This is the first time has withheld coverage to drugs approved through the FDA accelerated approval pathway. We need #AccessNow! Join us in voicing your support: p2a.co/NOkIavt.
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During today's NAPA Advisory Council meeting, reps from @CMSGov claimed FDA accelerated approval is not approval and that CMS is still awaiting evidence to give #AccessNow. Accelerated approval = Full approval AND it's the FDA’s job to determine drug safety and efficacy, not CMS.
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This month, we’re celebrating Asian Americans & Pacific Islanders, like actress and #ENDALZ Celebrity Champion , passionate about raising Alzheimer’s awareness in honor of her mom and all those impacted. #AAPIMonth
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"We're seeing a lot of bipartisan support ensuring that we are caring for those living with dementia in a comprehensive way." Our at today's NAPA Advisory Council meeting. Learn about the #ALZCareAct and take action in growing support: p2a.co/dTgpUhT.
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Happening now: Watch The NAPA Advisory Council meeting live as experts, including our , discuss Alzheimer’s treatments, research and funding. hhs.gov/live #NAPAAct
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Today’s #Ride2EndALZ Nation’s Capital participants pedaled their way to a fundraising milestone of $410K (and counting), all to support cutting-edge research in the fight to end Alzheimer's! Thank you, cyclists and volunteers, for your heart, hard work and dedication.💜 #ENDALZ
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Shana, who rides in honor of her Mema, is the #Ride2EndALZ Nation's Capital number #14 fundraiser—at 13 years old! Shana raised over $5,000 and crossed the finish line today after a 25 mile ride with her Mom, Dad and Grandpa. Congratulations and thank you, Shana! 🚲💜
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Here's an idea that is as cool as a glass of lemonade🍋! Set up a lemonade stand for #TheLongestDay in celebration of #NationalLemonadeDay to help #ENDALZ. Get started at alz.org/TLD.
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The dedicated volunteers at #Ride2EndALZ Nation's Capital are helping riders rest, snack, rehydrate and repair throughout the course this morning. Thank you, volunteers, for your hard work in making sure today's ride is a smooth one!
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Our awesome #Ride2EndALZ Nation's Capital participants joined family, coworkers, new friends & old pals today to make their way across the course and raise funds in the fight to end Alzheimer's! From individual riders to our biggest teams, you're all an inspiration. Thank you! 💜
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And they're off—the first groups of cyclists are hitting the road and pushing the fight to end Alzheimer's forward at #Ride2EndALZ Nation's Capital! 🚲💜
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It's time to ride and shine for 400 #Ride2EndALZ Nation's Capital cyclists pedaling to fuel research to #ENDALZ! 🚴♂️💜 Let's cheer them on! 🎉
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Today, and every day, we salute you, nurses! 👏🏽👏🏿👏🏻 Thank you to all of the amazing nurses who serve the Alzheimer’s and dementia population and all those in need of care. #NationalNursesDay #ENDALZ
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Journalist & #ENDALZ Celebrity Champion 's documentary “UNCONDITIONAL” focuses on a topic affecting 100 million Americans – mental health. Learn how to see the film, in which Richard shares his own Alzheimer’s caregiving story. bit.ly/3NFy97D
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We are proud to partner with to provide education programming and support services while increasing community engagement in Alzheimer’s and dementia research. Thank you, Black Nurses Rock, for your important work. #NationalNursesMonth
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Happy belated birthday to #ENDALZ Celebrity Champion who celebrated yesterday! Nina, we're so grateful for all you do for the fight to end Alzheimer's in honor of your mother. Thank you.💜
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Thank you, , for working with us to engage men in underserved communities on issues related to Alzheimer's disease and all other dementia. We are grateful for your partnership! #NationalNursesMonth
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