In case you are wondering what sort of information will be extracted, here's a list of particularly #sensitive 'codes' (i.e. recorded medical events) that will be uploaded from 1 July 2021, if any of them appear in your #GPrecord:
https://medconfidential.org/for-patients/gp-2021-sensitive-codes/ …pic.twitter.com/mVeOpAe02N
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Show this threadThanks. Twitter will use this to make your timeline better. UndoUndo
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I opted out last time, and they still passed my details to non-medical 3rd parties.
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Hmm. If you sent a
#Type1 opt out to your GP, your data should not have left the practice systems for any purpose other than your own care. I fear the old#Type2 opt-out (converted to the#NationalDataOptOut in 2018) is only respected ~20% of the time... http://theysolditanyway.com/ - Show replies
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Because it’s our personal data, do we hold the right to have it deleted after it is sold? Like we do with social media profiles?
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The data is psunoumised, your secrets will still be your secrets.
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Erm.
#Pseudonymised data is#PersonalData. And in any case,@NHSDigital holds the pseudo keys, and feely admits it can convert the pseudonyms attached to each and every dated medical event it extracts from your GP record to show your#NHSnumber, full#postcode and#DateOfBirth:pic.twitter.com/2NXfZmVTCo - Show replies
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Technically, they don't have permission to share this information in the first place. GDPR requires an opt in where use has not been previously disclosed. Why are the ICO not jumping up and down
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I bet there’s a get out clause.
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If I opt out, would it affect my ability to use services like Patient Access which depend on access to my GP medical records?
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No. Opting out of this latest
#GPdata grab - which is for 'secondary uses' like planning, commissioning, policymaking, research and commercial re-use - will NOT affect your direct care: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research#opting-out …pic.twitter.com/OWmEJSKOtT - Show replies
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