RESOURCES
FOR FACIAL SURGERY
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| Prepare for Surgery, Heal Faster By Peggy Huddelson. Detailed book with audio tape. One friend of Let's Face It, who has had over 60 facial surgeries, says she thinks all people should read this book whether they are having surgery or not!
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Articles on recovery after
major brain surgery
The Acoustic
Neuroma Association March 2002 newsletter (Notes) has
several articles that we found helpful and interesting. The newsletter
reports how patients and professionals deal with common issues after
major head and neck surgery: dry mouth, dry eyes, tinnitus, etc. The
lead article, Facial Rehabilitation after Acoustic Neuroma Surgery,
is written by OTR Facial Retraining Specialist H. Jacqueline Diels.
This article alone could be useful for discharge planning for head and
neck surgery patients. For free copies, contact the Acoustic
Neuroma Association.
Broken Bodies, Healing Hearts
Reflections of a Hospital Chaplain
Gretchen W. TenBrooks' paperback book is a delight. Her actions and
thouts as she walks the halls of Johns Hopkins Hospital are fun, deep,
and insightful. A wonderful gift for your favorite clergy person, social
worker, or Child Life Specialist.
Publisher: Haworth Press Inc.
Chronic Illness and the Twelve Steps - A Practical Approach to
Spiritual Resilience
Martha Cleveland gives us this clearly written guide to healing our
lives. Highly recommended by many Let's Face It readers.
Publisher: Hazelden Press
Complex Craniofacial
Problems - A Guide to Analysis and Treatment
By Dufresne, Carson, and Zinreich. Text book.
Available through interlibrary loan or medical libraries.
Publisher: Churchill
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Facing Facial Surgery? Cut Out the Caffeine |
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Finding
the Joy In Today,
Practical Readings for Living with Chronic Illness
By Sefra Kobrin Pitzelle. Down to earth daily readings for any
adult living with chronic illness or even wellness with a chronic
illness. Recently, several long- term head and neck surgery patients
have called thanking us for suggesting this paperback book. A welcome
gift.
Publisher: Hazelden Press
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Frances Cooke MacgregorThe late Professor Macgregor's publications reflect her 40 years of in-depth, detailed research with people who have facial disfigurement. Her validation of the "brief encounter" and what it can do to mental health is one of her many contributions to our knowledge about living with facial difference. Facial
Disfigurement: Problems and Management of Social
Interaction and Implications for Mental Health
Books by Professor Macgregor
The following two works are out of print, but many libraries have copies or can get you a copy:
For a complete bibliography of Professor Macgregor's work, send a SASE with $1.85 in postage to Let's Face It (address at bottom of page). |
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Friends' Health Connection
A powerful network that links anyone with a medical
problem to people and resources for that illness.
Roxanne Black, Director
New Brunswick, NJ
(800) 48-FRIEND
Web: http://www.48friend.org
| Generalized Anxiety Disorder: Toxic Worry The Harvard Mental Health letter published this article in their January 2003 issue. We found this article very interesting and helpful for understanding some anxieties in ourselves and others.
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I Can't Get Over It, A Handbook for Trauma Survivors
By Aphrodite Matsakis, Ph.D. Many adults who had surgeries as
infants and as adults have told us about the healing powers of this
book. Surgery of the head and neck are traumatic events in our lives.
The physical and medical symptoms of Post-Traumatic Stress disorders are
explained and the reader is given specific tools for healing. Let us
know if you find it helpful.
Publisher: New Harbinger Publications
Laurel's Kitchen Caring, Recipes for Everyday Home
Caregiving
By Laurel Robertson. Many practical nurturing ways to care for an ill
loved one.
Publisher: Ten Speed Press, 1997
Meeting the Challenge, Living
with Chronic Illness
By Audry Kron. The public are singing praises for this
200-page paperback. It is full of down to earth, creative ways of
dealing with the many parts of any chronic illness. We particularly
enjoyed Ms. Krons' direct steps for dealing with pain.
Center for Coping with Chronic Illness
West Bloomfield, MI
(248) 626-1379
My New Nose
In this article, Christne Lemmo, a
woman born with a cleft lip and palate, frankly shares the dilemmas of
deciding to have corrective surgery on her nose. This article, with
its honesty and hope, is a gift to all adults who are contemplating
facial surgery. AboutFace USA Winter/Spring 2002 Newsletter. You can
read this article on www.aboutface.org
or www.cleftadvocate.com.
National Coalition Against Domestic Violence
This service is for survivors of domestic violence who
have facial or neck disfigurement. The American Academy
of Facial Plastic and Reconstructive Surgery will refer
patients to its member surgeons who will perform free
reconstructive surgery. There is a careful screening
process. Recipients need to have been separated from their abusive
intimate partners for one year.
Ann Beauvais, Program Services Coordinator
Denver, CO
(303) 839-1852
E-mail: abeau@ncadv.org
Web: http://www.ncadv.org
Physicians' Guide to Rare Disorders - Second
Edition
Text book.
Publisher: Dowden
(800) 707-7040
The Relaxation Response
By Herbert Benson, M.D.
Publisher: Avon, 1999
Wherever You Go There You Are
Dr. Jon Kabat-Zubb gives the reader skills for taking
responsibility for their own health.
Publisher: Hyperion, NY, 1994
Your Body Believes Every Word You Say
Barbara Levine demonstrates and gives historical medical
facts about our bodies reactions to our thoughts.
Publisher: Words Work Publishing
(203) 372-0300
| Zip-N-Squeeze Patients, parents, and professionals are raving about this simple inexpensive eating device. This invention can revolutionize the care of jaw and oral surgery patients, old and young.
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Dinner Through a
Straw
Let's Do Lunch (and other meals)
By Becky R. Dethero. Delicious recipes.
Dinner Through a Straw, Murfreesboro, TN
(800) 842-3841
E-mail: dinnerthroughastraw@yahoo.com
Web: http://www.dinnerthroughastraw.net
A Patient Education Guide
for Wired Jaws
By Becky R. Dethero.
Plastic Surgical Nursing (Winter, 1995, vol.15, no.4)
For a copy, send a SASE with $1 postage to Let's Face It (address at bottom of
page).
American Chronic Pain Association
For over 20 years this network has been dedicated to giving support and
teaching coping skills to anyone suffering from chronic pain! Chapters,
annual meetings, education materials, etc.
Rocklin, CA
(916) 623-0922
E-mail: acpa@packbell.net
Web: http://www.theacpa.org
Chronic Illness and Uncertainty
A Personal and Professional Guide to Poorly Understood
Syndromes
Don L. Goldenberg, M.D. documents what we know and do not
know about fibromyalgia, chronic fatigue, migraine,
depression, and related illnesses.
Publisher: Dorset Press
National Chronic Pain Outreach Association, Inc. (NCPOA)
Milloro,VAD
(540) 862-9437
E-mail: ncpoa@cfw.com
Web: http://www.chronicpain.org
National Fibromyalgia Partnership, Inc.
Includes a wide range of information and resources on fibromyalgia
including articles, books/videos, online store, and events/studies.
Linden, VA
(866) 725-4404
E-mail: mail@fmpartnership.org
Web: http://www.fmpartnership.org
We are sorry you are needing information about new parts to your face, but we are delighted to bring you these resources that can explain some of the wonderful work that can be a part of your "new normal."
Also, please see the Craniofacial Surgery book on the web site of the Craniofacial Foundation of America and Face Value.
American Anaplastology
Association
The American Anaplastology Association is a nonprofit interdisciplinary
organization dedicated to promoting the art and science of prosthetic
therapy for patients with facial or somato differences due to cancer,
trauma, or congenital origin.
Seattle, WA
(206) 268-0311
E-mail: aaa@anaplastology.org
Web: http://www.anaplastology.org
Craniofacial Prostheses: Anaplastology and
Osseointegration
A text book detailing the techniques for rebuilding
faces.
Quintessence Publishing Co., June 1997, Carol Stream, IL
(800) 621-0387
Entific Medical Systems
Please contact for a free booklet about facial prosthetics.
Powell, OH
(888) 925-8484
E-mail: info@entificusa.com
Web: http://www.entific.com
| The Ocularist (video) A beautiful, 8 minute, short film. Director Vance Malone honors the art and grace of one man, Fred Harwin, who creates new eyes for patients who need them. This film won second place at the 2003 Sundance Film Festival. We urge craniofacial centers, schools, etc. to get a copy and to use it creatively.
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FindLaw
This is an excellent disability and law resource site.
Web: http://www.findlaw.com/01topics/36civil/disabilities.html
© 2003 Let's Face It,
Box 29972, Bellingham, WA 98228-1972; (360) 676-7325;
E-mail: letsfaceit@faceit.org
